It doesn’t surprise me that the number of autism and autism-related cases in this country continues to rise. The report out today just makes it official. 1 in 68 U.S. children have an autism-spectrum-related disorder, up from the previously thought 1 in 100. In ways, the rising rates are predictable, thanks to simple math. More kids (and adults) are aware of autism and autism-spectrum issues, more doctors are knowledgeable about autism, so more cases are bound to be diagnosed. Couple that with the links that researchers see between older mothers and an increase in the number of children born who have autism or are on the spectrum — and voila! Boys are more than four times as likely to be affected as girls. Just think: Autism rates jumped about 30% between 2008 and 2010, according the Centers for Disease Control and Prevention. And those are just the latest figures we have. Who knows what the number would be if we could take a snapshot this very minute. Why is this happening? The million-dollar question is whether something in the environment plays a role, says Robert Ring of Autism Speaks.
Originally posted on Carol Shay Hornung, Author:
Can people with Asperger’s lie? It would be nice to say no, but the truth is most people figure out that saying certain things get them into trouble, and once in a while everyone lies, usually to protect themselves.
It is true that people with Asperger’s lack some of the skills needed to tell a good lie – body language, either consciously or subconsciously, may give it away. Or the tone of voice, or an inability to create a plausible story. I do admit to using the “Aspies Don’t Lie” concept in Asperger Sunset as a plot device, but it is pretty idealistic.
People with Asperger’s do, however, have a strong desire to follow rules. Anxiety and emotion create a chaotic world and rules sort things out. Children with Asperger’s often play meticulous games with their toys, lining them up and grouping them, keeping everything in order. Following the rules…
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Yes, I’m seven seasons late to the beauty that is CBS’ The Big Bang Theory. The comedy won one of its lead characters, Dr. Sheldon Cooper, a third Emmy this year in addition to his wins in 2010, 2011. Yet I’ve just discovered what a gift the show is to the community of people who have an interest in Asperger Syndrome. It is aspie cool to the nth degree.
Actor Jim Parsons portrays Dr. Cooper, a gifted, gawky and genuinely lovable geek who exhibits some of the traits that can be associated with Asperger Syndrome: aloofness, inward focused, eidetic memory, discomfort in unfamiliar settings, the love of routine. The genius of the character and his place in the show is that he has a strong social group of peers who help him navigate the tricky world of interpersonal relationships. Oh that such social groups were the norm, not the exception.
Finding the right social group, one that you not only fit into but that makes you a better person, a higher achiever and moves you ever further toward self-actualization is sometimes an elusive goal for the person with an Asperger diagnosis. One-on-one relationships often can be easier than navigating group situations. Yet depending on one person for the bulk of your social activities can be limiting and disappointing, especially if schedules don’t mesh and opportunities to get together are minimum. That’s true even for people not on the spectrum and those who have no trouble meeting and connecting with new people.
A number of groups have sprung up to help anybody and everybody make social connections. Several are geared to young adults. Meetup.com is a great starting place to find an affinity group. Perhaps you love anime or videogames or cycling or outdoor adventures. Whatever your taste, there seems to be a Meetup to suit it. There’s even a specific Asperger group Meetup. Just go to the website, put in your Zip Code and you can find a group that gathers near you. Beyond that, churches, community groups, workplaces and the pages of your local newspaper or favorite local news website often provide information about activities and social groups that might appeal to you.
Asperger Syndrome is on the rise. At least that’s the implication of the latest research that finds autism is nearly twice as common as previously reported. The federal Centers for Disease Control and Prevention says nearly 1 in 88 children in the U.S. have autism — approximately one million children and teens. That’s up from 1 in 110 children in a 2006 study. Why the increase? The answer is inconclusive. It could be that better screening and diagnosis accounts for the findings. But there could also be overdiagnosis at play. What is clear, though, is that little progress has been made in the treatment for AS and autism and much more education and assistance is needed.
My frustration level runs high when it comes to new studies about the causes of autism. Researchers are quick to publish but often with findings that are sparse and less than helpful. The latest is a study in the Archives of General Psychiatry that asserts that environment might play as great a role in the roots of autism as does genetics. There are lots of studies that note a variety of issues might be contributing factors in autism: age of the mother, weight of the baby, infections, etc. None of those have been proven, of course. And in the latest study — conducted by Dr. Joachim Hallmayer and his team at Stanford University School of Medicine — it is reasonable to ask what types of environmental influences are at play. The study of identical and fraternal twins doesn’t say. Yet the study attributes a proportional role of environmental influences to genetic ones: 55% to 40%. More autism research, and money to fund that research, is needed. But more caution is also needed among those researchers trying to get at the roots of the developmental disorder. More than 1 in 100 children are thought to have autism. Let’s fund studies that are helpful to the millions of parents and parents-to-be who are searching for answers.
The headline from The Cincinnati Enquirer reads: “Students honor special-needs peers at prom.” It is heartwarming to read stories like this but it also reminds me that this kind of behavior tends to be the exception, not the norm, in society. Acceptance of people who look different or learn differently or whose personal challenges are different from our own does not come easily to many. But that acceptance is what our very humanness demands of us. “There but for the grace of God go I.”
It’s no longer “Unfinished Business” for one of the most engaging race teams in the history of the show. Undone by the samba and bikinis, Zev Glassenberg made TV history as the first contestant with Asperger Syndrome to take on the always grueling yet fantastically adventurous race around the world. The team challenge is replete with trials, chores, roadblocks and puzzles that test the mettle of the mightiest and bring some of the smartest to tears. Yet friends Justin Kanew and Zev cheerfully stuck out each leg of the race determined to make good on a second chance to win a million dollars — and avoid the mistakes of last season that torpedoed their earlier efforts. Zev deserves special recognition for shining a positive light on Asperger’s and helping the world grow in its understanding of it..
The debate over the safety of the MMR vaccine won’t likely be quieted by this latest news. The British medical journal BMJ today is calling the 1998 Lancet paper that implied a link between the MMR vaccine and autism “an elaborate fraud.” The mumps, measles and rubella vaccine has long been suspected by some to play a role in the childhood development of autism. But BMJ editor-in-chief Dr. Fiona Godlee says the “scare was based not on bad science but on a deliberate fraud” and that such “clear evidence of falsification of data should now close the door on this damaging vaccine scare.” Last year, Lancet retracted the study linking MMR to autism, citing faulty scientific research by Andrew Wakefield. BMJ is publishing a three-part investigative series this week to get to the heart of the scare.
I learned a new word today: coulrophobia. The abnormal or exaggerated fear of clowns, according to Wikipedia. This particularly phobia was the subject of a segment by Mo Rocca on CBS’ popular Sunday Morning show with Charles Osgood. But it made me think about all the other fears – rational or not – that we encounter in life. For young adults, the fear of not making one’s mark on the world ranks right up there. The fear of not finding the right mate, the right career, the right spiritual and social connections are all part of that larger fear. Psychologists say that underlying the fear of clowns is concern about what lies beyond the painted face. There are many unknowns as we enter new interpersonal relationships, new jobs and new social environs. If we let our phobias rule, paralysis can set in. But if we are willing to take a risk and put ourselves out there, we might find a great adventure beyond the painted surface.